I have always been a get-it-done, take charge kind of person. I love to be productive, and I'd usually rather be the one cooking/tidying/running errands if the other option is to watch someone else do it. I love to lead - some might call me bossy but I prefer the term 'effective.' (In primary school … Continue reading Help Needed
Tag: epilepsy
Who Ever Said Diamonds are a Girl’s Best Friend?
I've been wanting to write this blog for ages and I'm so excited to finally share it! My fav guest writer, Tali Wohlgelernter, took time out of her even-crazier-than-usual schedule to talk to me about her daughter's medical service dog. Tali's youngest daughter, 6 year old Sarena, has had seizures since 7 months old. At … Continue reading Who Ever Said Diamonds are a Girl’s Best Friend?
Don’t Cry Over Spilled Bleach
A year ago this week, Tali Wohlgelernter wrote a beautiful blog for my site about her daughter Sarena, and life with a baby with Dravet Syndrome- a seizure disorder that begins in infancy (see original blog here: https://wp.me/pc2nF1-O) Not much has changed since then... oh wait, so much has. Sarena walks, talks, the Wohlgelernter family … Continue reading Don’t Cry Over Spilled Bleach
Designer Epilepsy
Up until now this blog has been focused on those with chronic illness and how it impacts their lives. But it is equally important to give a voice to the caretakers, friends, family members, and lovers of those suffering. I am honored and proud to be able to share the writing of my mentor and … Continue reading Designer Epilepsy